Too Much Information?

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Health

I was first asked to give a DNA sample several years ago. The request came from a cousin who had learned that a graduate student was doing research and compiling a database of Jews of Eastern European heritage. The purpose, or one of the purposes, was to possibly connect distant relatives whose parents and grandparents had been killed and/or displaced during the Holocaust.


I declined. I couldn't verify the credentials of the research project and was uncomfortable about my DNA being in a database that seemed to be questionable in terms of security and privacy.


Recently, the issue came up again when another relative asked me to give a DNA sample. This time it seemed to be a more-commercial venture - with a promise of valuable genetic information.


Again, I was uncomfortable about the privacy and security issues. But I also confronted a new question. Unlike the first research project several years ago (which purported to be a way of tracking migrations and connecting you to lost relatives), this more-recent venture would give me both family and medical information.


Did I really want to know? Like all of us, I know my family medical history -- longevity, family illnesses, etc. But did I really want any more information? Especially information cloaked with the imprimatur of science?


I respectfully declined...but I wonder.....

Comments

Fred Klein

I have done it to determine my detailed ethnicity
Cynthia Somma

Wow. I would have done it, with strict confidentiality. The curiosity would have gotten the best of me.
Fred, did your test reveal anything you did not know?

Submitted by Katalin_Goencz on Thu, 11/21/2013 - 22:57

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Katalin Goencz

I am with you Ben.
David Abeshouse

Fred's test results revealed that he is "the most interesting man in the world," or at least related to him....

Submitted by Lucas_Meyer on Fri, 11/22/2013 - 04:03

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Lucas Meyer

On my father's side, we know back to 1848; all other information is either unavailable or we don't know where to look in Germany. On my mother's side, my great grandparents arrived in about 1880 from Austria-Hungary. Most were German-speaking Austrians, but there were a couple of Hungarians in the mix which why most of the members of that family are great cooks.

There's a website called 23 and me.com, where for $99, they'll tell you where you ancestors are from, find out what percent Neanderthal you, and let you know what diseases you're either predisposed to or if you are a carrier. I'm a little leery about having a company I've never heard of have such sensitive data about me, and I'm going to stand with Ben on this issue.

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